Day #7 WEGO writer's challenge-- People have no filter.

So I was a bit negligent this weekend and missed a few days and here I am picking up on day #7.
Here are the challenge details---

HAWMC Day 7 – Sensationalize!

Say WHAT!? What’s the most ridiculous thing you’ve heard about health or your condition? Where did you hear it and what did you think?

Do I really have to pick ONE ridiculous thing??? There's no way so I will just go ahead and throw a few out there. Note, my comments following would be written in a sarcasm font if available. 

* "Try eating more vegetables. If you eat healthier you'll have less digestive issues." Oh yes Obiwan. I should eat more fiber and ruffage and increase the activity in my ulcerated, bleeding and inflamed colon. Spot on!!! Why didn't my two GIs think of that? Hell, it could have been that easy!? It makes COMPLETE sense that my diseased guts would heal by sending rougher material through it. I feel like such a fool. :-/

* "Oh my god, THAT sucks. I would HATE to be that sick." Oh no, I freaking love it. Nothing like a week in the hospital for a good time. 

* "Try changing your diet." Yep. To what? Let me know what foods magically cure my immune system attacking my colon. 

* "You don't look sick."  This one is a classic among the IBD community. What does sick look like? Have you actually seen my colonoscopy pics? No? Well here, I'll show you what sick looks like from the inside. 

* "It's autoimmune? So you mean, like AIDS?"  That is a syndrome that develops from HIV. Nothing else is affiliated with your immune system besides AIDS. You guessed it. 

* "I wish I could not work and lay in bed all day." Oh do you? You wish you could have excruciating intestinal cramping where you can't stand up? You wish you had the arthritis that comes and goes where my knees feel like someone is stabbing them with a knife and my fingers hurt so bad I can't make a fist? Oh, you wish you were so anemic and malnourished that you can't stand up without blacking out and can't raise your arms over your head to wash your own hair? Really? You do? Hmmmm..that's an odd thing to wish for.

Those are just a few. People are ignorant and thoughtless. Do people really think that if something would work, we wouldn't TRY IT!!! If yoga could cure me, don't you think I'd be at a yoga studio 2 times a day, 7 days a week?? So frustrating. Even more reason to talk and tell my story and attempt to make people more familiar with IBD. 

I went out to a golf facility called Top Golf today. I used to golf a lot before I got sick. Afterward it was too painful to continuously twist and swing a club. It felt so great to do it and I felt so normal!!! Longest drive was only 103 but I'll take it!

Here's me! =)

Hope everyone had a great weekend!! Xo

So I was a bit negligent this weekend and missed a few days and here I am picking up on day #7.
Here are the challenge details---

HAWMC Day 7 – Sensationalize!

Say WHAT!? What’s the most ridiculous thing you’ve heard about health or your condition? Where did you hear it and what did you think?

Do I really have to pick ONE ridiculous thing??? There's no way so I will just go ahead and throw a few out there. Note, my comments following would be written in a sarcasm font if available. 

* "Try eating more vegetables. If you eat healthier you'll have less digestive issues." Oh yes Obiwan. I should eat more fiber and ruffage and increase the activity in my ulcerated, bleeding and inflamed colon. Spot on!!! Why didn't my two GIs think of that? Hell, it could have been that easy!? It makes COMPLETE sense that my diseased guts would heal by sending rougher material through it. I feel like such a fool. :-/

* "Oh my god, THAT sucks. I would HATE to be that sick." Oh no, I freaking love it. Nothing like a week in the hospital for a good time. 

* "Try changing your diet." Yep. To what? Let me know what foods magically cure my immune system attacking my colon. 

* "You don't look sick."  This one is a classic among the IBD community. What does sick look like? Have you actually seen my colonoscopy pics? No? Well here, I'll show you what sick looks like from the inside. 

* "It's autoimmune? So you mean, like AIDS?"  That is a syndrome that develops from HIV. Nothing else is affiliated with your immune system besides AIDS. You guessed it. 

* "I wish I could not work and lay in bed all day." Oh do you? You wish you could have excruciating intestinal cramping where you can't stand up? You wish you had the arthritis that comes and goes where my knees feel like someone is stabbing them with a knife and my fingers hurt so bad I can't make a fist? Oh, you wish you were so anemic and malnourished that you can't stand up without blacking out and can't raise your arms over your head to wash your own hair? Really? You do? Hmmmm..that's an odd thing to wish for.

Those are just a few. People are ignorant and thoughtless. Do people really think that if something would work, we wouldn't TRY IT!!! If yoga could cure me, don't you think I'd be at a yoga studio 2 times a day, 7 days a week?? So frustrating. Even more reason to talk and tell my story and attempt to make people more familiar with IBD. 

I went out to a golf facility called Top Golf today. I used to golf a lot before I got sick. Afterward it was too painful to continuously twist and swing a club. It felt so great to do it and I felt so normal!!! Longest drive was only 103 but I'll take it!

Here's me! =)

Hope everyone had a great weekend!! Xo

curves, swerves, and milestones.

Hey everyone... I have been a bad blog mommy. It has been way too long and it's because I'm back in school and the last few weeks most of my free time has been studying for my A&P exam, practical and writing a lab report. This weekend I need to do some reviewing but I can't make myself pick my book up yet.
Hubs was organizing and getting some of the taxes done earlier today and I had to give him all the miles I had driven for medical reasons. As I was going through the list, todays date from last year popped up and it was the day I had my last Remicade infusion!! It wasn't supposed to be my last but after the debacle the new hospital put me through and how long it took I never rescheduled the one more I should have gotten before I had my colectomy. I survived, even though I took a chance that my flare would get worse and cause issues going into surgery. I just couldn't bring myself to go back another time and pump myself full of chemicals that weren't even doing their job. Not to mention the pneumonia I was fighting (not fighting) to no avail because I had zero immune system from the Remi. Choosing to skip that last infusion was a toss up for me because it meant chancing my flare getting worse, but on the flip side, prolonging my pneumonia and possible postponing my surgery because I couldn't get better. So I decided to give my immune system a go when by March, I still had pneumonia from the end of January and had been on roughly four rounds of antibiotic and two steroid shots. I could not get rid of it and as April approached I was getting really nervous that my colectomy would have to be rescheduled because I couldn't fight stupid pneumonia.
It all worked out in the end after a few more rounds of antibiotic, another steroid shot, a set of chest x rays and two CT scans. I'm pretty sure the outcome would have been different had I bombarded my body with more Remi at the end of April.
Needless to say, I haven't been sick since. Stuffed up a few days here and there but not sick! Finally... after constantly being rundown, feverish, achy, and coughing for a year at a time, I've got nothing even close. AMAZING!! So, I felt the need to write a little something commemorating this first milestone of a few more that will come this year.
School has been crazy, trying to handle it the best I can with everything else that goes on day to day. Every day there's something with kids...there are days I have to choose what to make a priority and obviously it's my kids. I'm not too happy with my first test score but I made the class average so I guess it could be worse. A lot worse.
My 18 month old is basically out of control. Everyday I think she's going to bounce her way out of her crib a la Tigger. It's nuts. No sitting still. Unless she's asleep. And she really doesn't like me studying. She prefers to take my pens and pencils and attempt to make graffiti on my $180 lab book. AWESOME.
Oh and I'm blonde again. So many exciting things. My head's swimming with all the activity around here. =)
I'm really excited that the girls and I are heading to Florida for a few days over spring break.  Daytona bound! Whenever I go back it's like I go home a bit. I loved living down there. I had the best time. I miss the beach. I miss the salt air. I can't wait. It'll be nice. My sister will be going down too and I'll get to meet my little niece. Can't wait. I have roughly two weeks to get my body bikini ready... totally possible, right??!! Right..... ;-) Ok good. I'll start on that tomorrow. Or maybe Monday. We'll see. I don't know. Maybe some self tanner will hide everything. Kinda like photoshop. Sounds perfect.
My oldest turns 8 a week from today. I can't even believe it. Too much to process. An 8 year old. Holy crap. How am I old enough to have an 8 year old??? No birthday plans yet because school has been consuming my life, but as the song says... "Life throws you curves. You learn to swerve". Thanks, Rascal Flatts. That sums up the last few years perfectly.
Have a great weekend everyone. Thanks for reading. XO

Hey everyone... I have been a bad blog mommy. It has been way too long and it's because I'm back in school and the last few weeks most of my free time has been studying for my A&P exam, practical and writing a lab report. This weekend I need to do some reviewing but I can't make myself pick my book up yet.
Hubs was organizing and getting some of the taxes done earlier today and I had to give him all the miles I had driven for medical reasons. As I was going through the list, todays date from last year popped up and it was the day I had my last Remicade infusion!! It wasn't supposed to be my last but after the debacle the new hospital put me through and how long it took I never rescheduled the one more I should have gotten before I had my colectomy. I survived, even though I took a chance that my flare would get worse and cause issues going into surgery. I just couldn't bring myself to go back another time and pump myself full of chemicals that weren't even doing their job. Not to mention the pneumonia I was fighting (not fighting) to no avail because I had zero immune system from the Remi. Choosing to skip that last infusion was a toss up for me because it meant chancing my flare getting worse, but on the flip side, prolonging my pneumonia and possible postponing my surgery because I couldn't get better. So I decided to give my immune system a go when by March, I still had pneumonia from the end of January and had been on roughly four rounds of antibiotic and two steroid shots. I could not get rid of it and as April approached I was getting really nervous that my colectomy would have to be rescheduled because I couldn't fight stupid pneumonia.
It all worked out in the end after a few more rounds of antibiotic, another steroid shot, a set of chest x rays and two CT scans. I'm pretty sure the outcome would have been different had I bombarded my body with more Remi at the end of April.
Needless to say, I haven't been sick since. Stuffed up a few days here and there but not sick! Finally... after constantly being rundown, feverish, achy, and coughing for a year at a time, I've got nothing even close. AMAZING!! So, I felt the need to write a little something commemorating this first milestone of a few more that will come this year.
School has been crazy, trying to handle it the best I can with everything else that goes on day to day. Every day there's something with kids...there are days I have to choose what to make a priority and obviously it's my kids. I'm not too happy with my first test score but I made the class average so I guess it could be worse. A lot worse.
My 18 month old is basically out of control. Everyday I think she's going to bounce her way out of her crib a la Tigger. It's nuts. No sitting still. Unless she's asleep. And she really doesn't like me studying. She prefers to take my pens and pencils and attempt to make graffiti on my $180 lab book. AWESOME.
Oh and I'm blonde again. So many exciting things. My head's swimming with all the activity around here. =)
I'm really excited that the girls and I are heading to Florida for a few days over spring break.  Daytona bound! Whenever I go back it's like I go home a bit. I loved living down there. I had the best time. I miss the beach. I miss the salt air. I can't wait. It'll be nice. My sister will be going down too and I'll get to meet my little niece. Can't wait. I have roughly two weeks to get my body bikini ready... totally possible, right??!! Right..... ;-) Ok good. I'll start on that tomorrow. Or maybe Monday. We'll see. I don't know. Maybe some self tanner will hide everything. Kinda like photoshop. Sounds perfect.
My oldest turns 8 a week from today. I can't even believe it. Too much to process. An 8 year old. Holy crap. How am I old enough to have an 8 year old??? No birthday plans yet because school has been consuming my life, but as the song says... "Life throws you curves. You learn to swerve". Thanks, Rascal Flatts. That sums up the last few years perfectly.
Have a great weekend everyone. Thanks for reading. XO