My journey with Ulcerative Colitis from 2008 has culminated with me having a total colectomy and j pouch creation surgery. I'm still struggling daily. My life is far from normal, and I live in chronic pain. That doesn't stop me though. Not much can. I'm like a hurricane.
Saturday, February 23, 2013
curves, swerves, and milestones.
Hubs was organizing and getting some of the taxes done earlier today and I had to give him all the miles I had driven for medical reasons. As I was going through the list, todays date from last year popped up and it was the day I had my last Remicade infusion!! It wasn't supposed to be my last but after the debacle the new hospital put me through and how long it took I never rescheduled the one more I should have gotten before I had my colectomy. I survived, even though I took a chance that my flare would get worse and cause issues going into surgery. I just couldn't bring myself to go back another time and pump myself full of chemicals that weren't even doing their job. Not to mention the pneumonia I was fighting (not fighting) to no avail because I had zero immune system from the Remi. Choosing to skip that last infusion was a toss up for me because it meant chancing my flare getting worse, but on the flip side, prolonging my pneumonia and possible postponing my surgery because I couldn't get better. So I decided to give my immune system a go when by March, I still had pneumonia from the end of January and had been on roughly four rounds of antibiotic and two steroid shots. I could not get rid of it and as April approached I was getting really nervous that my colectomy would have to be rescheduled because I couldn't fight stupid pneumonia.
It all worked out in the end after a few more rounds of antibiotic, another steroid shot, a set of chest x rays and two CT scans. I'm pretty sure the outcome would have been different had I bombarded my body with more Remi at the end of April.
Needless to say, I haven't been sick since. Stuffed up a few days here and there but not sick! Finally... after constantly being rundown, feverish, achy, and coughing for a year at a time, I've got nothing even close. AMAZING!! So, I felt the need to write a little something commemorating this first milestone of a few more that will come this year.
School has been crazy, trying to handle it the best I can with everything else that goes on day to day. Every day there's something with kids...there are days I have to choose what to make a priority and obviously it's my kids. I'm not too happy with my first test score but I made the class average so I guess it could be worse. A lot worse.
My 18 month old is basically out of control. Everyday I think she's going to bounce her way out of her crib a la Tigger. It's nuts. No sitting still. Unless she's asleep. And she really doesn't like me studying. She prefers to take my pens and pencils and attempt to make graffiti on my $180 lab book. AWESOME.
Oh and I'm blonde again. So many exciting things. My head's swimming with all the activity around here. =)
I'm really excited that the girls and I are heading to Florida for a few days over spring break. Daytona bound! Whenever I go back it's like I go home a bit. I loved living down there. I had the best time. I miss the beach. I miss the salt air. I can't wait. It'll be nice. My sister will be going down too and I'll get to meet my little niece. Can't wait. I have roughly two weeks to get my body bikini ready... totally possible, right??!! Right..... ;-) Ok good. I'll start on that tomorrow. Or maybe Monday. We'll see. I don't know. Maybe some self tanner will hide everything. Kinda like photoshop. Sounds perfect.
My oldest turns 8 a week from today. I can't even believe it. Too much to process. An 8 year old. Holy crap. How am I old enough to have an 8 year old??? No birthday plans yet because school has been consuming my life, but as the song says... "Life throws you curves. You learn to swerve". Thanks, Rascal Flatts. That sums up the last few years perfectly.
Have a great weekend everyone. Thanks for reading. XO
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment